Transition Readiness Assessment for Sickle Cell Patients: A Quality Improvement Project

2014 Archives, Archives, June 2014, Vol. 21, No. 6, Reports from the Field

Jerlym S. Porter, PhD, MPH, Yvonne M. Carroll, RN, JD, Sheila Anderson, BSN, RN, Paul T. Lavoie Jr, PA-C, MHS, Latacha Hamilton, EdS, Margery Johnson, LCSW, and Jane S. Hankins, MD, MS

From the St. Jude Children’s Research Hospital, Memphis, TN.

This article is the fourth in our Hemoglobinopathy Learning Collaborative series. See the related editorial by Oyeku et al in the February 2014 issue of JCOM. (—Ed.) 



Objective: To describe the use of quality improvement (QI) methodology to implement an assessment tool to evaluate transition readiness in youth with sickle cell disease (SCD).

Methods: Plan-Do-Study-Act (PDSA) cycles were run to evaluate the feasibility and effectiveness of a provider-based transition readiness assessment.

Results: Seventy-two adolescents aged 17 years (53% male) were assessed for transition readiness from August 2011 to June 2013. Results indicated that it is feasible for a provider transition readiness assessment (PTRA) tool to be integrated into a transition program. The newly created PTRA tool can inform the level of preparedness of adolescents with SCD during planning for adult transition.

Conclusion: The PTRA tool may be helpful for planning and preparation of youth with SCD to successfully transition to adult care.


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